Connecting Families
Is your family affected by GNB1 Syndrome? Get connected...
The Foundation was started and built by parents of individuals with GNB1. We get it. We understand it is great to finally get a diagnosis, but equally frustrating for that to be the end of where the doctors can help. Joining forces and sharing stories has helped us feel less alone and more empowered. We are passionate about getting answers for our kids and hope you will join our community on this journey.
Join the GNB1 Registry
Stanford University is hosting an international registry for individuals affected by GNB1 Syndrome (a.k.a. MRD 42) and related disorders affecting the G Protein pathway.
Join the GNB1 Registry
The purpose of a registry is to have a central contact list and information on known cases of GNB1 for the purposes of research and important health-related communication.
If you would like to be enrolled use the button below to contact the GNB1 Foundation.
Learn more about GNB1 here. Meet those affected by GNB1 and read our stories.
GNB1 Foundation, LLC
501(c)(3) non-profit organization
Founded 2017
